Development of a home-based eccentric viewing training program for clients with age-related macular degeneration through a researcher-clinician partnership

Ms Marie Chantal Wanet (INLB) 

Presentation at the 3rd International SensAge Conference, 23 June 2014: Promoting Active Participation By Ageing People with Sensory Disabilities.

Please click at the powerpoint presentation below to view the presentation.

Background & Objective:

Age-related macular degeneration (AMD) is the most frequent diagnosis at the Institute Nazareth et Louis-Braille (INLB) rehabilitation agency. Although some patients spontaneously find a new retinal fixation point, some need training to understand eccentric viewing (EV) and improve their functional vision. Few materials are available in French to assist in training EV. A structured and standardized EV training program was therefore developed and implemented at the INLB. Then, a follow-up study was carried out to characterize the clinical population receiving these interventions and to evaluate its effectiveness. 

Methods:

An evidence-based EV training program has first been developed and clinically implemented. A retrospective study was used to collect clinical, sociodemographic, performance and satisfaction data from 158 charts of clients having received the program. 


Results:

Clients getting EV training were between 30 and 99 years old, with level of visual impairment (VI) ranging from moderate VI to near blindness. Satisfaction rate was high and effects of the EV interventions included better reading and writing skills, as well as improved instrumental activities of daily living and leisure activities. Currently, 41 professionals have been trained to implement this program, which is now part of the range of services offered by the INLB and other rehabilitation centres in the Province of Quebec.

Conclusion:

The availability of a structured EV training program should foreseeably benefit a significant francophone population.

Discussion:

Further research is required to systematically evaluate the efficacy of this EV training program. Specifically, an experimental protocol that includes systematic measurements of the PRL, such as an OCT scanning laser ophthalmoscope, would be desirable. 

Acknowledgements:

This research has been funded by the Research Fund of INLB, Quebec, Canada. 

Date: 06/23/2014
Author: Wanet, Marie Chantal
Organization: Institut Nazareth et Louis-Braille (INLB)
Reference:
Only for Members: No
Content type: Presentation
Tags: macular degeneration, rehabilitation
Categories: Medical & Functions, Eye - Vision impairment, Overall support

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